Thursday, July 31, 2025

Thoughts from the Deep End of the Pool

Real life, not just caregiving life

 

Thoughts from the Deep End of the Pool

There was a time when the phone lit up like clockwork. When my dad had money — when I had money — the calls came without prompting. When Dad or I had something to give — money, help, a ride, advice, or contacts — the calls weren’t quite so discretionary. Or seasonal.

Now? Silence has its own schedule. I’m not bitter. Just noticing. The shift in attention and retention has its own currency — and love doesn’t seem to be the tender.

Empty pockets don’t attract flies.

I admit I haven’t made the calls, either. I don’t maintain contact with those people because my life is lived in a very specific space — a caregiving space. And a distant one. Out of sight, out of mind. The habit of keeping in touch faded with time, and not just because of caregiving or dementia. Life weighs heavy on both sides of the scale. It doesn't tip — it sinks. And I can't fault people for that. I'm as much to blame as anyone. I didn't keep the contact going. And just because my dad is elderly now, with dementia, the habit of them calling him has long since faded out.

Those people will live with regret after my dad passes. They’ll think of him more often, wish they’d done more, and suffer over it more than they did during his last days and years. I know they will.

Because whenever my dad is in the hospital, they call. They post. They check in.

When he’s home — alone, with me — there’s silence.

Priorities of the mind. Preparing themselves to grieve.

And no one grieves for the living … apparently. Not when there isn’t a chance of something to gain.

The thing about people who ask or beg — who take, who accept — is they rarely offer the same in return. Not without reminding. Not without prompting. Sometimes not without blackmail — emotional or evidentiary.

I've never been the type to ask for help, financial or otherwise — not from family. I write things, say things that detail our struggles and needs, and if people don’t offer, I don’t ask.

I've accepted help from my father, sure, and I’ve given help in return — money too. He never asked me. I never asked him. We just offered. That’s just our nature, I guess.

When we could help, we did help. Even when we got taken advantage of, we didn’t stop helping — not when the need was legitimate.

If it doesn’t occur to someone to offer help, that’s just who they are — their nature. I tend to unconsciously distance myself from people like that, even if I care about them. Even if I care deeply.

The ones that bother me most these days? The fair-weather ones. The “OC of the moment” ones.

They call, they say, I’m going to video call every week from now on. I want to do this. There’s no reason not to. And for a month or two, they do. And then something comes up — and it evaporates. Poof.

Never mentioned again. Until the next wave of mood or guilt hits. It cycles.

I’m always here. Showing up. Shoveling things. Holding it together. Bearing the weight while others drift in and out.

And sure — life happens. People get sick, get busy, get distracted, get weighed down themselves. But the silence that follows connection? That’s harder to excuse when someone’s 92. Every week counts differently at that age. Their sporadic involvement doesn’t bother my dad much. But it bothers me.

I had hope for a little while. I felt happy, for a while. And when it’s over, it weighs heavier than before.

They could have. Should have. Would have. But didn’t. Choice — not circumstance.

We can’t expect people to be selfless. But we do hope. Especially when it’s family.

And when you don’t ask them, they’ll say, I would have, but you never asked.

And when you do ask them, they’ll say, I wish I could, but I can’t.

And they cling to their would have, and forget all about the could have and the should have — but didn’t.

Money and resources play a major role in this, no matter what anyone claims. When you have — and you’re giving — people are there. When you have not — they are not.

If there’s something for them at the end, they’ll probably show up near the end. That’s why they come out of the woodwork when someone’s in the hospital — but not when they’re at home or in long-term care.

Yes, your focus must be on your own family, your life, your work. But when you forget who helped you get where you are — and let me tell you, you didn’t do it alone — you’re not a decent, caring person.

You’re just a person.

And everything you give to you and yours? You won’t realize it, but you’re teaching them. And when your time comes, they’ll treat you the same way.

You just don’t know it yet.


M.W. Van Dyke


Monday, July 28, 2025

Caregiving Unzipped: Oh, the Battle of the Shave

It is a battle when they don't want it

 

Oh, the Battle of the Shave

Got Dad up, out, and fed this morning — standard routine. I’ve been feeling a bit peaky this past week, so I’ve backed off some things. Problem is, when I back off, the Senior Helpers seem to take that as their cue. Not always, but lately it’s been hot and draining. Our AC rarely drops below 76°F, and while I’ve acclimated to it, the irony isn’t lost on me: years in computer labs and server rooms never prepped me for this kind of heat tolerance. People used to call those places walk-in freezers. Never bothered me — I thought they were kind of nice. Must be the Looks-like-Santa gene kicking in. North Pole vibes and all that. These days I mostly wear shorts and a t-shirt — year-round home uniform.

Anyway… Dad was itching to go to bed much earlier than usual. Probably bored with whatever was on the TV — not that he bothers to fake interest anymore. Happens. He doesn’t read these days either. He used to, almost as much as I do, which is no small claim. Now the books sit gathering dust — like backup dancers who missed their cue.

I hope this doesn’t disillusion anyone, but I lean hard into honesty here: Dad and I? We’re cussy. We throw words like other families toss Frisbees. He cusses at the helpers daily as they try to get him dressed or cleaned down around the “fruit and veg” area — as the Brits like to call it. Me? I like some Brit phrasings myself. I prefer “wanker” over the American equivalents. There’s something artisanal about it. Slightly less crude, slightly more refined — like choosing Dijon over plain yellow mustard.

Lately, no one’s been pushing Dad to shave daily — and that’s a problem. Hair’s easier to tame when it’s just breaking ground. Once it grows out, no matter how you slice or buzz, he claims it hurts. Dementia folk love that word: “hurts.” It can mean anything — or nothing. “You’re hurting me!” can float out of nowhere. Sometimes they say it when you’re across the room and merely thinking about touching them.

So tonight, with Dad hours from bedtime, I looked at his scraggle-covered chin. You’d think I’d just let him go full beard, seeing as I have one — but Dad never wore a beard. Since we resemble each other, my beard feels like one of the few things that marks us apart. And trimming his into something presentable? That’s not less work — it’s more. And more often. Facial hair grows like debt — quiet and fast.

I brought out the electric shaver and mirror. Asked him to use it. He declined. I told him no — he wasn’t going to bed with that fuzz. He told me to f-off. I told him FU right back and get busy shaving. Showed him the mirror. “You look like a homeless drifter,” I said. He told me to go stuff myself. I called him a twinkie. All of it with a laugh just behind the voice. Always is. Dad’s got that mischievous twinkle sometimes — like he’s in on the joke even if he’s forgotten the setup.

I transformed the kitchen into an impromptu barbershop: trimmer, guides, shaving cream, cape, Chux pad under the chair. Got him seated — grudgingly. Cape on. Trimmer humming. Then came the wrestling match. Dad doesn’t know his own strength — but I know mine. Leverage, positioning — I never hurt him, but I do know how to hold off an uncooperative force.

I used to be a cowboy. Vaquero. Buckaroo — though no one called me that unless they were looking for a new career in dental reconstruction. I herded cattle, sheep, worked ranches. Did the hard-but-gentle stuff like shearing sheep. Didn’t have a choice, but got good at it. Haven’t ridden a horse in years, but I could probably still shear a sheep. I definitely managed with my elderly critter tonight.

You’ve got to know someone’s physical breaking point — that line where bone and muscle meet frustration. Especially when they’re fighting hard, unaware of just how brittle their frame’s become. They’ll swing, shout, twist — and it’s up to you to make sure nothing actually breaks. It was a struggle. At one point I handed him the electric razor and told him to finish the job himself. He gave it a go. I had to take over. I kind of miss having a lasso.

If someone had walked in mid-shave, they’d probably dial Adult Protective Services. There was a lot of “You’re hurting me! Stop it! Help!” from Dad, and a chorus of “Stop being a twinkie. Shaddup. Hold still. This would’ve been done ten minutes ago if you just — hold still!” from me. We sounded like a tragic sitcom taped in a rodeo arena.

Did what I could. Had Dad wipe the cream off his face. Pulled the cape, brought his walker. He stood, wandered toward the living room. I asked where he was headed.

“I’m going to watch TV. Can I have some coffee? Anything to nibble on? Any cake?”

And just like that, the bedtime demands evaporated. He’s out there now — watching a favorite show, sipping coffee, eating Raspberry Danish. Eventually, the night will catch up and he’ll want bed again. That’s how it works — with him, with me.

I love my dad. I think he loves me. We speak our language — smirks and cusses, barbs and shared crumbs of humor. It’s not everyone’s family dynamic. Might not be yours. If it’s not, thank the stars or count your luck. But I wouldn’t trade it. What we say and how we say it — always with a grin, never with anger — that’s catharsis. At least in this house.



Saturday, July 26, 2025

Swimming, When No One Taught You How (Elegiac and Non-Elegiac Versions)

 

Two poem of deep considering


Swimming, When No One Taught You How

(Non-Elegiac Version)

Most of us aren’t saints — we’re swimmers.
Cursing the current, watching the tide turn yellow,
Some of our fellow paddlers cause it to flow,
With grins too wide and hands too dirty.
We dodge brown bits of memory,
Resurfaced truths, stories best left half-told.

The water’s warm, but not welcoming.
It carries echoes, sobs, declarations made under too much gin.
We paddle past last chances, lost bets,
Good intentions bloated and floating.

Some dive deep for reckoning,
Others skim the surface, slick with avoidance.
I swim steady, head high,
Because below me rests the past—
And I’ve already drowned there once.

Copyright 2025 M. W. Van Dyke
All Rights Reserved

_________________________________________________

Swimming, When No One Taught You How
(Elegiac Version)
Most of us aren’t saints—just swimmers,
caught in the same slow current,
treading water where regrets ripple faintly
and silence carries the weight of choices
too heavy to name aloud.

The yellowed tide isn’t all rot—
it’s memory, tinged with the off-color truth
that some of the spill came from us.
And the brown flecks—well,
they drift from yesterday’s claims and
the mouths that swore they’d changed.

Some dive for clarity,
others drift, letting time disguise intention.
Me, I paddle quietly,
between the ache and the echo,
between what was done
and what was almost brave.

I keep my head above the past,
not out of pride,
but because I know its undertow—
the ghosts it hides,
the way it teaches drowning
before it ever teaches how to swim.


Copyright 2025 M. W. Van Dyke
All Rights Reserved



Wednesday, July 23, 2025

The Bunny Stew - A twisted ode to Easter indulgence and poetic mischief

A twisted ode to Easter and Bunnies

 



🕯️ The Bunny Stew

A twisted ode to Easter indulgence and poetic mischief
Devoted to the Addams Family and Poe


Today is the day for the bunny stew;
Keep your favorite bunnies safe and secured!
For to some dark pot,
They may be lured!
In a pressure cooker,
A bunny may be… cured.


The yummy sound! The Yummy sound!
Let no one waste the nutriment.
For in some cultures,
your favorite cute and cuddly pet
might be nothing more than a savory,
And tasty...
Personal regret.


The bunny stew! The bunny stew!
When Peter Cottontail hopped down that last,
dark and lonely trail...
Did he end his journey with his innards in a pail?
No! Not him! Not The Easter Bunny!
Not that one too!


We do not eat bunnies on Easter.
At least not some.
Most share their bunnies on Easter cards.
Many more, candy is the form.
Some give stuffed bunnies as toys,
While others like their bunnies...
Alive and warm.

Are they chocolate?
Or inside are they pink?
It makes me wonder,
My stomach gurgle,
And it makes me think;


To me it is all the same:
Be it the card, the toy,
or the product from a chocolate mold;
We are all having some portion,
Some part to play,
In the making of a bunny buffet.


Oh Beatrix, dear, with watercolor grace,
Your bunnies wore jackets, not seasoning’s embrace.
But culture is hungry, the stew pot is bold,
And your stories feel colder when bunnies are sold.
Your name was Potter, but not that kind of pot,
And for sure, your bunnies, never were never that hot.


But why should chickens be alone, unheard?
Their eggs go into boiling pots,
Not gently stewed, but made hard — absurd!
Cooled and painted, lined up with care,
Then left to spoil in springtime air.
No one eats those eggs — unless they dare
To stomach a sickness not fit for the fair,
And trade their hops… for trots they’ll bear.


The Bunny Stew! The Bunny Stew!
The Real Authentic Bunny Stew!
What a tradition it could be made to be,
On Easter, when the plate is served,
And when the children cry, "A bunny?! A Bunny?! Why oh why!"
The parent can then smile and say,
"Worry not my child, it will live again on the 3rd day."



Copyright 2014 and 2025 M. W. Van Dyke
All Rights Reserved


Tuesday, July 22, 2025

Whispers Beneath the Trees - A Natural Elegy

A poem of nature and process


Whispers Beneath the Trees


The wind flowed in, and it caressed,
Going where it felt it should go,
Gentle in its passing,
So gentle, even the grass didn’t feel it or know.
It continued on through glen and vale,
And out again, with knowledge kept.

The grass was still, undisturbed. The dandelion, untouched — still waiting.
Heather, full and heavy, bowed in quiet bloom,
Its blush brushing the brightly shadowed variance above.
A berry tree leaned near — ripe with bounty,
Colorful. Enticing. Almost enough to stir a breeze.

At the glen’s heart, a brook
Drifted lazily — not babbling,
But whispering, making almost no sound.
Sunlight peered out from behind the clouds up high,
And escaped between the leaves.
The pebbles and stones flickered very slightly
Beneath a passive sky and slow, willowy drift.
It was delicate, brief, what the sunlight revealed.

The downward slopes were mild and tiered,
Layered with bushes and shrubs,
And with leafmoss, nettles, bramble scrub.
Quiet, they were, above the carpeted ground —
Meshes of vines, of grasses, and small flowering cultivations.
Silent. Still. Only visible in a discreet way.

Dew from morning still remained,
Slowly receding from view,
As hints of fog did too,
Drawn back to colder, darker places
Where little sun ever showed through.

The trees — their canopies wide —
Covered the upward stretch of the downward slope,
Lending bare light to the yearning competition below,
Just enough to keep them there,
Not enough to let them peak or grow.

Fruitless trees held dominion over all.
And always, there is one more ancient —
The one who stands tall through three seasons and fall.
Reaching up. Growing out. Roots deeper than any.
Claiming everything. Noticing nothing.
The shade it gives is not offered in kindness,
Yet it comforts many,
In the vastness, the quietness, of its solitude.

Creatures, medium and small, move beneath the outer trees.
Some live within, many without,
Residents and explorers,
Careful — and also carefree.
The birds nest in those trees,
Watching the open spaces with caution.
They sing songs of welcome
And of warning.
Except for the hawks,
Whose gaze is meant for something else — Entirely.

Other eyes beneath the shadowing canopies
Watch the open grassy calm, the heathered grounds,
Hoping for distracting moments to visit the whispering brook,
And perhaps to find something interesting along the way —
With leaps and bounds, hopeful only for unassailing sounds.

The quiet glen — it doesn't dream.
It breathes. No unrealities dwell within it.

The tree of ancient majesty towers above,
Roots digging deep and far, and away.
Of the surface, beneath it, it heeds nothing of,
Yet it gives shade when shade is needed,
And what settles there, might nourish its needs.
It will remain, standing there, for time unnoticed and forgotten —
Until something remembers it all that shouldn't.
Those who notice life outside will pray
That man never finds this quiet, small glen.
For then it would fade away.
For man covets natural calm and beauty,
And always loves it into extinction.



Copyright 2025 M. W. Van Dyke
All Rights Reserved


Saturday, July 19, 2025

The Twitching Dance of the Squirrels - A Rural Elegy

 

A rural elegy, sharpened with absurdity and shadowed by Poe.



🐿️ The Twitching Dance of the Squirrels

A rural elegy, sharpened with absurdity and shadowed by Poe.

Squirrels are suicidal.
It’s true. There is no doubt in my mind. Squirrels want to die.

I drive the long, rural country roads of Kentucky—roads that dance through towns with names like Shelbyville, Simpsonville, Campbellsburg, Pendleton, Bedford. New Castle’s tucked out there too. Between these places lie woods, winding lanes, and plenty of dead things.

Several times a week I take the same stretch—to a community where deer leap over cars like theater performers with poor timing. One road in particular hosts a man who lets out over a hundred chickens to peck at the gravel, along with wild turkeys and, bizarrely, peacocks. It’s a barnyard parade with feathers and confusion.

And on this road: the carnage. The aftermath. The dance.

Huge carrion birds feast on the fallen — birds with wingspans like patio umbrellas who rise lazily at the approach of rubber and steel. Their arrogance is palpable. They don’t rush. They simply glide away, mildly irritated, knowing the road will serve up fresh meat tomorrow.
There are other roads, other buffets, just over the next hill.
A banquet of roads.

It’s a creek road, and each day it’s littered anew with
half-eaten, half-claimed, half-chewed reminders of risk assessment gone wrong.
They share little, or nothing, except for death—and perhaps, a strange camaraderie wherein the eyes go first.
The birds favor the eyes.
Rubbery delicious balls of flavor, apparently.

Because on such roads, there are no lanes, no dividers—just suggestions.
You don’t drive them. You interpret them.

I drive, alert. Always hoping something doesn’t dart out at the last second.
Something always does. And I manage, avoid—except for the squirrels.
Because squirrels, I swear, want to die.


🪶 The Rules

There are unwritten rules to such roads.
You don’t learn them—you absorb them.

  • Rule one: If you brake for a squirrel, a pickup truck that wasn’t there a second ago will be behind you.
  • Rule two: If you swerve, that truck will appear from the opposite direction.
  • Rule three: If you do nothing, the squirrel will dance… and the truck won’t exist at all.

It’s this last rule that leaves you remorseful.

Squirrels time their suicide runs with uncanny precision.
They wait for your approach—darting into that razor-thin moment when impact is all but guaranteed.
It’s not just bad luck.
It’s choreography.
And if it’s not intentional, then surely it’s a dare—a challenge born of instinct and misplaced confidence.
A daring that lacks depth perception.

Most aren’t claimed by death immediately. That comes later.
Squirrels die twitching—often with shattered vertebra underneath a vehicle of any shape or size or color.
At some point, they quiver and lift their tails, and that’s when the twitching begins.


🕺 The Dance

The twitching dance is mesmerizing.

It’s like watching a wind-up ballerina — sweeping fast at first, circling, tail flicking, break-dancing in almost an elegant way.
Many squirrels, I suspect, dance themselves off the road.
What we see are the ones who didn’t quite have the legs for it.
And for every ten roadside dancers, how many hundreds pirouetted out of sight?

As a species, squirrels dance well.
And perhaps this explains why country roads are always surrounded by lush greenery.
Good fertilizer is easy to come by there.

When winter approaches, the dance grows more fervent.
The birds migrate, but roadside cultivation thrives.
The squirrels keep dancing, seeking their final partner—the one with perfect timing and unyielding talent.

The autumn leaves fall, yet the road stays clean—swept clear, it seems, by the twirling dancers of the day and of the night.
Sunrise, moonlight, dancers.
Polished by fur and brush and tail, the dance floor opens again and again.

And so forever it goes on...
The twitching dance of the squirrels.



Copyright 2025 M. W. Van Dyke
All Rights Reserved

 
Click to watch the video version of this on YouTube

Friday, July 18, 2025

Caregiver's Comfort Kitchen: Morning Mercy Bowl

Quick Oats but Lasting Sustenance


🥣 The Caregiver’s Morning Mercy Bowl

A warm, nourishing oatmeal tailored for caregiving — layered with thoughtfulness, flexibility, and real-world wisdom.

🍽️ Ingredients

👥 Full Serving (splits easily between two people)

  • 1 cup quick oats
  • 2 cups whole milk
  • 1 long banana, sliced (½ per person)
  • ¼ cup soft raisins (optional)
  • ¼ to ½ cup diced canned peaches (or similar soft fruit) (optional)
  • 1 tablespoon butter or margarine
  • 1 tablespoon raw honey (optional but recommended)
  • A few dashes of nutmeg and/or ginger powder
  • 2 dashes of salt before cooking oats (optional)
  • Optional sweetener (such as maple syrup or a sugar packet)

🙋 Half Serving (perfect for one person)

  • ½ cup quick oats
  • 1 cup whole milk
  • ½ of a long banana, sliced
  • 2 tablespoons soft raisins (optional)
  • 2 to 4 tablespoons diced canned peaches (optional)
  • ½ tablespoon butter or margarine
  • 1 tablespoon raw honey (still the full amount)
  • Pinch of nutmeg and/or ginger powder
  • 1 dash of salt before cooking oats (optional)
  • Optional sweetener (if needed)

🥄 Why Half?
Caregivers often prepare bowls that carry more than oats — layered with fruit, flavor, and compassion. Half-servings leave space for extras and work well for solo routines or smaller bowls.


🔧 Instructions

  1. Prepare your bowl(s) first.
    Layer sliced banana, diced fruit, raisins, butter/margarine, raw honey, and spices in the serving bowl or bowls.
  2. Cook oats separately in whole milk, adding salt before cooking if desired.
    Use stovetop or microwave. One dash for half-serving, two dashes for full. Omit if butter and fruit are salted.
  3. Pour freshly cooked hot oats over the bowl ingredients.
    The heat gently softens the fruit and melds flavors.
  4. Stir gently. Cover bowl for 2 minutes.
    This helps retain steam and soften textures.
  5. Uncover and stir again.
    Add warmed milk if a creamier consistency is preferred.
  6. Sweeten if needed based on your loved one's taste or energy needs.


📝 Caregiver’s Kitchen Wisdom

  • 🧂 Even sweetness needs contrast.
    Salt brings depth — skip it if your butter and fruit are already salted.

  • 🍌 Bananas are bold. Half is enough.
    Slicing keeps texture soft and balanced.

  • 🍯 Honey doesn’t scale — its impact does.
    One tablespoon per bowl, even in a half-serving. Soothes, nourishes, and supports immunity.

  • 🧈 Butter vs Margarine? Choose the story.
    Butter adds richness; margarine suits dietary needs. Mind sodium levels.

  • 🍑 Fruit adds more than flavor.
    Canned peaches hydrate and soften. Use ¼–½ cup per serving unless fresh fruit is extremely juicy.

  • 🥣 Oats don’t rush, neither do we.
    A pause under the lid allows softness to bloom — and the moment to settle.

🧾 Estimated Nutrition per Half Serving (1 bowl)

NutrientApproximate Value
Calories    300–350 kcal
Protein    6–8 g
Total Fat    10–12 g
Saturated Fat    3–5 g
Carbohydrates    40–45 g
Sugar (natural + added)    18–22 g
Fiber    3–4 g
Sodium    75–150 mg (depending on salt & fruit)
Calcium    150–200 mg
Potassium    300–350 mg
Vitamin A & D    ✅ (from milk & butter/margarine)
Iron    ✅ (from oats & raisins)


Thursday, July 17, 2025

Caregiving Unzipped: Let Me Tell You About Today

Another day in the life of a family caregiver


Let me tell you about today.

I was sitting at my desk sipping coffee, planning around what I had to do because today was off-routine. The Senior Helper had called off sick Tuesday, so the agency rescheduled for Thursday with a replacement aide. They said her name was Carol and she'd be here at noon.

It was 9:30am, so I figured I had time. Trash, grocery store, prescriptions, get back, hydrate Dad — then walk the new helper through the ropes. I don’t leave unknown people alone with my father, especially not in my house.

Then the doorbell rang.

I assumed it was maintenance — our kitchen sink needed fixing. I opened the door expecting a wrench, and instead found a short young lady, maybe 25, maybe 12. I genuinely can't tell anymore. I tilted my head and said, “Hello. How can I help you?” Fully aware that my white t-shirt was stamped with the morning’s bodily fluids.

She said, with a heavy accent, “I am Hope. I am from Senior Helpers. I am schedule with you today.”

You can guess the rest. I called Senior Helpers asking where Carol was and why someone named Hope was at my door at 9:30am when Carol was supposed to be here at noon — which was already earlier than our usual time. They offered foggy answers. Carol had something come up. Hope was a better fit. Sorry for the time change. They’d make a note that I should be informed about schedule adjustments. Smoke and mirrors. Platitudes.

I was polite, as I always am. Funny, as I always am. My voice is apparently deep and calm — and some say sexy. If a lady mentions that, I usually reply, “Ah, well, where were you 20 years ago?” They laugh. They blush. It’s strange, because I mostly look like Santa Claus on laundry day.

It was a good thing Hope was in the other room and the supervisor on the phone couldn’t see my eyes. My eyes… they were not laughing. If they’d seen those eyes, they’d have probably called the police and ran.

Still, I moved forward with Hope. I introduced her to Dad. He was unusually pleasant today. No insults, no shouting. Only aimed his displeasure at me, as usual. Hope gave him a shower. Not bad, really. I did the final cleanup — barrier cream, dressed him, showed her how to fold the guard pad into the adult underpants, how to wrap a day-pad around the catheter tubing.

I pointed out the glasses, how to clean them, where the hearing aids go — the usual caregiver playbook. Dad made it out to the living room with his walker. He wanted coffee. He wanted food.

I asked Hope if she could cook. She said no. I wasn’t surprised — modern times. So I told her, “Watch me and learn.” I microwaved quick oats, toasted bread, fried eggs while explaining the difference between sunny side up and over easy. I was a cook in a former life. Also a cowboy. That part wasn’t relevant today.

I finished the oatmeal first — added banana, butter, honey, seasonings — and had her bring it to Dad. Then I plated the rest and served him breakfast. He sipped coffee but hadn’t touched the oats. That’s fine.

I sat back down to try to salvage my derailed day and figure out what kind of afternoon I was about to stumble into.

About fifteen minutes later, Hope quietly approached the doorway. I motioned her closer — my hearing’s never been good.

She said, “I asked your dad why he wasn’t eating. He said because he needed his teeth.”

And that’s what I forgot today. With all the prep, instruction, and mental juggling… I forgot to give Dad his dentures. He had sat there all that time, patiently waiting, not saying a word.

These are the days of our lives.
A soap opera named A Family Caregiver.


Wednesday, July 16, 2025

The Caregiver Daze - A Poem

When all days seem like the same day


The Caregiver Daze


A year of days,
not counted,
but totaled into one.
Not tracked on calendars.
Not memorable by name.
Just lived.
Fully.
Repeatedly.
Quietly.
Over and over again.

The same day,
where some moments might be unique,
but the rest of the time
it is exactly the same day.
Unremarkable, and unremarked.
Mirrored from yesterday.

Each day carries many stories—
some told,
most not,
some recognized,
some forgot—on purpose.
Some are etched in the pause between medications,
in the silence after the medicine cabinet clicks shut.

The only real changes to the day
are changes of clothes,
of underwear,
and of laundry accumulation.
Depend on the day,
in several different ways.

We think it is Sunday,
when it is Thursday instead.
Time blurs—
not from wear,
but from repetition.
The last cup of coffee
before we drink it again.

Still, we live it.
Quietly.
Over and over again.
Not noticing,
until we notice it.

Pills in a cup.
Shirts folded twice.
One more load of laundry.
One more walk to the garbage pail.

What remains of you
after so many mirrored days?

The breath before the next one.
The pause between the cabinet’s slow click
and the next yearning look out the window.
That long sigh, the slight slump of the head,
before you begin moving again.
You move onto tomorrow,
which is actually yesterday,
and will be again—
same time,
next year.


Copyright July 2025 M. W. Van Dyke
All Rights Reserved


When PT Isn’t Enough: What Caregivers Need to Know

 
When it is not enough


🩺 When PT Isn’t Enough: What Caregivers Need to Know About Physical Therapy and Dementia

Physical therapy sounds like a solution — a structured routine, a trained professional, a path to mobility. But when dementia enters the picture, the equation shifts. PT, whether delivered at home or in a facility, is often not equipped to meet the emotional, cognitive, and behavioral changes that come with dementia. And when sessions are infrequent, the burden silently shifts to caregivers — without support, without acknowledgment, and without the training professionals rely on.

🧠 PT Without Dementia Training: Why It Misses the Mark

  • Resistance is misread: Dementia-related confusion or overstimulation may be labeled “uncooperative” or “belligerent.”
  • Communication falters: Simple commands don’t always land. Patients may not comprehend the instruction, the reason, or the context.
  • Progress metrics don’t apply: Dementia care isn’t linear. A bad day doesn’t mean regression — it means the brain is rerouting.

Without this awareness, therapists may disengage — and discharge prematurely.

🎭 The Therapist Effect: Why They’ll Do It for Them, Not You

There’s a quiet heartbreak when your loved one won’t respond to your prompts—no movement, no cooperation. Then the therapist arrives, and suddenly: motion.

Why?

It’s the performative lens of the outsider. Showtiming, it is called. People with dementia may still retain a social instinct to behave politely for professionals or strangers. Family? That’s layered with emotion, history, and sometimes confusion about roles.

So when your loved one doesn’t perform, the therapist may recommend discharge. That clinical choice leaves caregivers holding the bag — trying to coax motion from someone who won't respond to a family member's directions, who may only feel motivated to move when a stranger asks rather than a family member.

And that hurts.
It annoys.
It bothers you.
Not because you expect miracles,
but because now you’re the therapist.
You’re expected to continue the routine.
Without credentials, tools, or emotional distance.


🎒 The Invisible Load on Caregivers

  • A role they didn’t ask for and aren’t trained in
  • Emotional weight from refusals that feel personal
  • The pressure to “keep them moving” without clarity on how

This isn't just physical exhaustion — it’s emotional erosion.

🧭 Toward Dementia-Informed Therapy

Caregivers don’t need more expectations. They need allies. They need providers who:

  • Understand cognitive variability
  • Communicate with patience and simplicity
  • Redefine success in ways that meet the person where they are

Dementia changes the rules. Therapy must follow suit.

✅ What We Can Do

  • Ask questions early: “Have you worked with dementia patients before?” “How do you handle confusion or resistance?”
  • Pair movement with connection: Use music, photos, favorite phrases to trigger participation.
  • Redefine success: One stretch, a reach for the remote, even foot tapping to rhythm can be movement wins.
  • Document what works: Track what times, tones, and tools get results. Share this with providers — and other caregivers.
  • Push for dementia-informed care: Advocate for PT programs that include behavioral training. Collaboration changes outcomes.

🧾 Final Thoughts

Physical therapy can be a bridge — but for people with dementia, it must be built with different materials. What works for the body must also respect the mind. And what looks like progress to a professional may be unsustainable for a caregiver walking the path alone.

Caregivers deserve more than instructions. They deserve insight, support, and an honest reckoning of what dementia really asks of a family.



Monday, July 14, 2025

Four Lifetimes - A Poem

From youth to teen to adult to old


Four Lifetimes

My days were longer —
or so they seem to me now.
Childhood stretched across seeming decades.
Teenage years, an entire life lived in forevers.
Adulthood passed slowly… but faster.
And now these older years move
both slow and fast,
at the exact same time.

Moments lasted forever.
Moments lasted an hour.
Moments lasted only moments.
And I lived them all to arrive here,
now.

My life was made of four lifetimes,
and still, it goes on —
until I reach that river,
that river of forever night’s dreaming,
when time will seem like nothing again.


Copyright 2025 M. W. Van Dyke
All Rights Reserved


Thursday, July 10, 2025

A Horse With No Name - The Poem of My Life

My life, it is a horse with no name, no title


A Horse With No Name

My path — I walked it.
My life — I lived it.
It was sad and lonely,
Happy and exciting,
But mostly it was the usual.
Mundane, it seems to me.

Not a tale to be told,
Not an epic life story or biography—
Just moments in time where
I lived, I listened, I heard,
I explored, and I ingrained.

Not a single story to be written,
Only fragments that surface now and then,
Mixed with wisdom or heartbreak,
Melted together with seasonings of
Frivolities and stupidities and ramifications.

Moments in time — light or dark,
Sunrises and sunsets and midnights,
My rises and falls, and my daily normalcies.
All together they make up my life.

And my life…
Is a Horse With No Name.


Copyright July 2025 M. W. Van Dyke
All Rights Reserved


Sunday, July 6, 2025

Not All Aides Are the Same: A Family Caregiver’s Guide to Who Does What

 

The manual we caregivers were never given


Not All Aides Are the Same: A Family Caregiver’s Guide to Who Does What

Note:
I’m not a nurse, a lawyer, or a certified anything. I’m just a long-haul family caregiver sharing what I’ve learned the hard way — through lived experience. This isn’t medical advice, legal advice, or professional guidance. It’s a map drawn from the trenches, for anyone else trying to find their way through.



🧭 Understanding the Roles: Who’s Who in Home Care

Not all “aides” are created equal — and not all services mean what you think they mean. Here’s a breakdown of the most common roles you’ll encounter in home care.

🧑‍🦽 Personal Care Aide (PCA)

  • Training: Minimal; often on-the-job or agency-provided

  • Scope: Non-medical assistance with daily living

  • Tasks May Include:

    • Bathing, dressing, grooming

    • Light housekeeping

    • Meal prep

    • Companionship

    • Medication reminders (not administration)

  • Limitations: Cannot perform medical procedures or administer medications

🩺 Home Health Aide (HHA)

  • Training: Formal certification (varies by state)

  • Scope: Similar to PCA, with some basic health-related tasks

  • Tasks May Include:

    • All PCA tasks

    • Checking vital signs

    • Basic wound care (under nurse supervision)

    • Assisting with medical equipment

  • Limitations: Still not licensed to perform invasive procedures or administer injections

🧑‍⚕️ Certified Nursing Assistant (CNA)

  • Training: State-certified with clinical hours

  • Scope: More medically focused; often works in facilities

  • Tasks May Include:

    • All HHA tasks

    • More advanced hygiene and mobility support

    • Monitoring and reporting health changes

  • Limitations: Still works under supervision of a nurse or physician



🧠 “Alzheimer’s & Dementia Care”: What It Really Means

Many agencies advertise “Alzheimer’s & Dementia Care” as a service — but what does that actually mean?

“The VA pays for our Senior Helpers. One of their services is Alzheimer’s & Dementia Care. I thought in the beginning that was going to be our plan. But that is not actually a singular plan. It is on top of other plans, and it is really more about assessment and planning. The actual home aides, most are not trained in Alzheimer’s & Dementia Care. They are help aides, not specialists.”

In most cases:

  • A care plan is created by someone with dementia training

  • The day-to-day care is delivered by general aides (PCAs or HHAs)

  • The aides themselves may have little or no dementia-specific training

Unless explicitly stated, “dementia care” often means planning, not specialized execution.



📋 The Checklist Illusion: What Gets Checked vs. What Gets Done

Agency aides are typically given a checklist of duties to complete during each shift. These may include:

  • “Walk with patient”

  • “Assist with hygiene”

  • “Prepare light meal”

Before clocking out, they check off each task — often on a phone screen you’re asked to sign without seeing the details.

But here’s the catch:

  • “Walk with patient” might mean a full lap to you — but to the aide, it might mean following them from the bedroom to the recliner.

  • “Assist with hygiene” might mean a full sponge bath in your mind — but to them, it’s handing over a washcloth.

Technically, they’re not lying. But practically? They’re not doing what you or the agency likely intended.



🧾 One-Time Aides, Different Rules

If your regular aide is out and a replacement shows up, they may not have the same:

  • Training

  • Experience

  • Comfort level with your care routine

  • Scope of duties

And yet, you’re rarely told this. You’re expected to treat them as interchangeable — but they’re not.

Every aide who enters your home — even for one shift — should come with a clear explanation of:

  • Their role (PCA, HHA, CNA, etc.)

  • Their scope of duties

  • Any limitations or restrictions

  • What they are not allowed or trained to do

Without that, you’re left guessing — and that’s not just frustrating. It’s dangerous.



💊 Medication: The Most Blurred Line in Home Care

What’s the Difference Between a Reminder and Administration?

Medication Reminder:

  • Involves prompting the care recipient to take their medication

  • Examples: “It’s time for your pills,” pointing to a pill minder

  • Can be done by PCAs or HHAs (depending on state and agency policy)

  • Considered low risk if the aide is not physically handling the medication

Medication Administration:

  • Involves physically giving or applying the medication

  • Examples: Handing over pills, applying medicated creams or ointments, giving injections

  • Typically requires additional training or licensure (HHA with certification, CNA, LPN, or RN)

  • Carries higher legal and medical risk if done improperly

In practice, many aides do apply creams, hand over pills, or assist with inhalers — especially when they’ve been with a client for a long time. But that doesn’t mean they’re trained or authorized to do so.

Why It Matters

  • If something goes wrong, the aide could be held responsible for acting outside their scope.

  • Families may assume aides are trained to do more than they are.

  • Aides may feel pressured to “just do it” — even if they’re unsure or uncomfortable.



🕰️ When You’re Not There: The Hidden Risks of Respite

Many family caregivers aren’t present during the aide’s shift. They’re working, running errands, or simply trying to rest. During that time, the aide becomes the sole caregiver — and the decisions they make carry real consequences.

If an aide:

  • Misinterprets a medication schedule

  • Applies a cream incorrectly

  • Misses a dose or gives the wrong one

  • Doesn’t recognize a reaction or symptom

…the family caregiver may not find out until hours later — or until something goes wrong.

What You Can Do

  • Have a written care plan: Include medication times, dosages, and what the aide is (and isn’t) expected to do.

  • Use labeled pill minders: Pre-filled and easy to follow.

  • Leave notes or voice memos: Especially if something changes that day.

  • Ask for a shift summary: Even a quick verbal recap can reveal what was missed or misunderstood.

  • Advocate for consistency: The more familiar the aide is with your loved one’s routine, the safer and smoother the care.



🧾 A Note on Private Hires: When You’re the Employer

Some caregivers explore hiring help privately — outside of an agency — to gain more control, consistency, or affordability. It can work well for some families, but it comes with its own set of risks and responsibilities.

"I don’t have experience with private hires myself — because I can’t afford them. If the VA didn’t pay for our home help, I wouldn’t have any help at all. And I know I’m not alone in that."

Still, based on what I’ve read from other caregivers and what seems logical, here’s what I’ve learned:

Potential Benefits

  • You choose who you hire and when they work

  • Often more consistent care, fewer rotating staff

  • May be more affordable without agency overhead

Potential Risks

  • No background checks or training unless you arrange it

  • No liability coverage or formal oversight

  • You become the employer — responsible for taxes, scheduling, and conflict resolution

  • No backup if they cancel or quit

If You Go This Route

  • Get everything in writing: duties, pay, hours, expectations

  • Clarify what they can and can’t do — especially around medications or medical tasks

  • Consider liability insurance or a payroll service

  • Always have a backup plan

Private hires can work — but they’re not a magic fix. And for many of us, they’re simply not an option. That’s why understanding the agency system — and how to navigate its gaps — is so essential.



🧹 “I’m Not a Maid”: When Aides Misunderstand Their Own Role

Sometimes the confusion isn’t just on the family’s side — it’s on the aide’s side too.

You might ask an aide to mop the kitchen floor or wipe down the bathroom sink, and hear something like:

“I’m not a maid.”
“That’s not my job.”
“I’m a CNA — I don’t do housekeeping.”

And here’s the thing: they might believe that. They might have training as a CNA or HHA and think that makes them “above” certain tasks. But if they were hired through an agency to provide in-home support, and the contract includes light housekeeping, then yes — that is part of the job.

This kind of misunderstanding usually happens because:

  • The agency wasn’t clear with the aide about the expectations

  • The agency wasn’t clear with you about the aide’s scope

  • The aide is relying on their certification title, not the job description they were hired under

You didn’t hire a hospital CNA. You hired a home aide. And in the home, that often includes laundry, dishes, and yes — mopping the floor.

This isn’t about demeaning the aide’s skills. It’s about aligning expectations. If the agency says “light housekeeping” is part of the role, then the aide should know that. And so should you.

What You Can Do

  • Ask for a written duty list: What exactly is included in “light housekeeping”?

  • Clarify the aide’s role at the start: Especially if they’re new or a replacement

  • Loop in the agency if needed: If the aide refuses a task that’s in their scope, the agency needs to address it

  • Stay respectful, but firm: You’re not asking for a favor — you’re asking for the job to be done as agreed

When everyone understands the role — and respects it — the work gets done, and the dignity stays intact.



🛋️ When Familiarity Becomes Fatigue: The Risk of Getting Too Comfortable

Over time, a good aide can start to feel like part of the family — and that’s often a gift. Familiarity brings ease, rhythm, and trust. But it can also bring something else: complacency.

When an aide has been with your loved one for a long time, they may:

  • Start cutting corners on tasks they used to do thoroughly

  • Get too casual with hygiene, mobility, or safety routines

  • Spend more time on their phone or chatting than actually engaging

  • Assume they know what’s best — without checking in

And here’s the hard part: as family caregivers, we do this too.
We have slack-off periods — not out of laziness, but out of necessity. We let our loved one sleep longer so we can sleep longer. We skip a bath day to catch up on bills. We let things slide because we’re running on fumes and need to regroup.

But there’s a difference:
We’re not being paid. They are.
And if we are being paid, it’s not enough.
Not for 24 hours a day. Not for the emotional labor. Not for the constant vigilance that never really ends.

"I’ve seen this happen firsthand. An aide who had been with us for a while started showing up later and later, sitting more than helping, and checking her phone constantly. She was comfortable — too comfortable. And I get it. This work is hard. But when comfort turns into coasting, it’s the care recipient who pays the price. And the family caregiver who has to quietly pick up the slack."

When an aide starts treating the job like background noise — showing up but not really showing up — it’s time to reset expectations. That doesn’t mean confrontation. It means clarity.

What You Can Do

  • Revisit the care plan: Ask the agency for a fresh copy and review it together.

  • Have a check-in conversation: “I’ve noticed a few things slipping — can we talk about how to get back on track?”

  • Document changes: If routines shift (like letting your loved one sleep in), make sure it’s intentional — not just inertia.

  • Trust your gut: If something feels off, it probably is. You’re the one who knows the baseline.

Familiarity should never mean fading effort. And professionalism doesn’t have to mean coldness. The best aides strike a balance — and when they don’t, it’s okay to speak up.



🧭 Final Thoughts: The Manual That Never Came

Family caregivers are expected to manage a rotating cast of aides, navigate unclear job roles, interpret vague checklists, and ensure their loved one’s safety — all while juggling their own lives.

They’re expected to know:

  • What each aide is trained to do

  • What they’re allowed to do

  • What they might do anyway

  • And how to fix it when something goes wrong

And often, they’re expected to do all this from a distance — while working, resting, or simply trying to survive.

This is the reality of home care.
Not the brochure version. Not the agency pitch.
The real version — where the lines are blurry, the stakes are high, and the caregiver is the only one holding the whole thing together.

Caregiving is a system held together by people who were never given a manual.

But maybe, just maybe, we can start writing one — together.